i was able to go back and see jonah before i headed home this afternoon. i've got 3 hours to drive back to greenville and the weather is nasty, so it might take longer. finally being able to see him feels like a wonderful conclusion to my time here, though we've still got a long ways to go.
patrice just updated her blog before we went back that gives us the latest information about jonah. the quick version--he definitely has epidermolysis bullosa, but now it's just a matter of what type it is. we won't find that out until the 2nd biopsy comes back in a week or so, and even then, it will take observation to determine the severity of the type.
we have made some fabulous connections with other blogs and the facebook group. we just ask that everyone continue praying for this precious boy and share love with the family. PRAY WITHOUT CEASING. there are so many amazing things God can do, and we just ask that His hands work throughout this whole situation.
so now...just a few pictures to show how our little "mummy man" is doing back in NICU. the burn unit recommended the gauze, which is helpful in keeping the raw areas moist and safe from infection.
we opened the door to see if he'd respond to her voice and wake up. i wish we could have gotten some open-eye photos, but that'll have to come another day.
patrice peering in at him.
a shot from the back of the incubator. a full shot from the side of the incubator. he's receiving antibiotics, a sugar water drip and pain meds through an umbilical tube in his belly button.
alright, i'm getting on the road. thank you so much for the support you've shown this family so far and please continue to pray for jonah as we await the results of the biopsy and continue to monitor his progress in the NICU.
2 hours ago